Low Dose Naltrexone Forum - Dermatomyositis

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Low Dose Naltrexone Forum :: General :: LOW DOSE NALTREXONE DISCUSSION FORUM--Main Board :: Dermatomyositis

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Topic: Dermatomyositis (Read 1,079 times)

DonnaP
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Dermatomyositis
« Thread Started on Mar 30, 2009, 11:58am »

Any info on LDN it's effects on Dermatomyositis?

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Brenda
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Re: Dermatomyositis
« Reply #1 on Mar 30, 2009, 12:33pm »

Mar 30, 2009, 11:58am, DonnaP wrote:

Any info on LDN it's effects on Dermatomyositis?

I haven't run across anyone using it for D but there are a couple of people using LDN successfully for Polymyositis.

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Brenda

jim
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Re: Dermatomyositis
« Reply #2 on Apr 13, 2009, 11:55pm »

Donna,
Yes my wife Kathryn has DM and she has been on LDN for about 5 weeks at 2.0 mg per day, and is slowly titrating up (will try to reach 4.5 mg per day), as we are closely watching her thryoid. LDN is helping. Also, Minocin at 200 mg every 2nd night has helped alot too. Dr. Burt Berkson at the LDN Conderence at USC in OCT2008 spoke of one of his patients who has Dermatomyositis, who recovered after a year on LDN and alpha lipoic acid. -Jim

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Tejpal
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Re: Dermatomyositis
« Reply #3 on Jun 2, 2010, 10:38pm »

I was diagnosed with Dermatomyosistis four years ago... it took me 4 months to get the diagnonsis (to find a doctor who could diagnose it), and it took 2 years to recover completely. Now i am NOT taking any medicines and completely fine for last one year. I underwent the dexamethasone cyclophosphamide pulse therapy, which is an inexpensive therapy from All India Institute of Medical Sciences, the top institute in India. You can search the web for this, you will get many references. This therapy works for most of the autoimmune diseases. My email id is tejpsingh@hotmail.com, if you need any other info, u r welcome.

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