dave New Member
 member is offline
Joined: Dec 2006 Posts: 5
|  | Crohns+Naltrexone=Remission « Thread Started on Feb 1, 2007, 8:56am » | |
Last November: 200mg Imuran, 6mg Entocort, 9-Imodium tablets and 6-8 BMs per day. Today: NO Imuran, NO Entocort, NO Imodium, 4 1/2mg Naltrexone and 3-4 BMs per day. Weight gain of 8 lbs with no change in intake or exercise. I presume this is due to better absorption. Folks, this is the genuine article. Dave D
| |
|
cstainke Guest
|  | Re: Crohns+Naltrexone=Remission « Reply #1 on Mar 18, 2007, 11:00am » | |
I am wondering how you tapered off of the Imuran. I am currently trying to get a prescription for the LDN . I have Crohn's also and I am on 175 mg of Imuran. Do you begin the taper before you start taking the LDN or after you start it. Is it something a doctor would tell you, or do you have to take matters into your own hands. Im glad that the LDN worked for you! I hope this treatment will also work for me. Would be nice to feel "normal" again.
| |
|
Brenda Administrator
     member is offline
![[avatar] [avatar]](http://farm3.static.flickr.com/2074/2043508173_a56d24a13d_t.jpg)
![[homepage] [homepage]](http://images.proboards.com/buttons/www_sm.gif) Joined: Mar 2004 Gender: Female  Posts: 5,119 Location: Mid-South USA
|  | Re: Crohns+Naltrexone=Remission « Reply #2 on Mar 18, 2007, 2:50pm » | |
You might want to contact Dr. Jill Smith at Penn State Univ. and ask how to taper off.
Smith is the one whose been running the Crohn's/LDN trials.
|
Brenda
|
|
cstainke Guest
|  | Re: Crohns+Naltrexone=Remission « Reply #3 on Mar 18, 2007, 3:08pm » | |
Ok, ill try and contact her about it tomorrow. Is it hard to get in touch with her- as it seems to be with most doctors. seems like all i do is play phone tag.
| |
|
Brenda Administrator
     member is offline
![[avatar] [avatar]](http://farm3.static.flickr.com/2074/2043508173_a56d24a13d_t.jpg)
![[homepage] [homepage]](http://images.proboards.com/buttons/www_sm.gif) Joined: Mar 2004 Gender: Female  Posts: 5,119 Location: Mid-South USA
|  | Re: Crohns+Naltrexone=Remission « Reply #4 on Mar 19, 2007, 7:57pm » | |
e-mail her
Jill P.Smith M.D. <jsmith2@psu.edu>
|
Brenda
|
|
cstainke Guest
|  | Re: Crohns+Naltrexone=Remission « Reply #5 on Mar 20, 2007, 8:08pm » | |
OK, I emailed her and got a response ( although it wasnt really the one i was looking for). She didnt give me the taper on the Imuran, but she said that they were still taking patients in for the Crohn's trial. I don't think that I would be able to be in the trial , since I live in Minnesota and it is taking place at Penn State. I cant afford to be off of work that long and travelling is a nightmare. I asked her again in my reply what the taper for Imuran is . I am currently on 175mg. Hopefully I get something back this time.
| |
|
Brenda Administrator
     member is offline
![[avatar] [avatar]](http://farm3.static.flickr.com/2074/2043508173_a56d24a13d_t.jpg)
![[homepage] [homepage]](http://images.proboards.com/buttons/www_sm.gif) Joined: Mar 2004 Gender: Female  Posts: 5,119 Location: Mid-South USA
|  | Re: Crohns+Naltrexone=Remission « Reply #6 on Mar 21, 2007, 8:52am » | |
Check with the Penn State trial, one may not have to live in the state to participate. Ask a knowledgeabe pharmacist how to taper off Imuran.
|
Brenda
|
|