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Joined: Mar 2004 Gender: Female Posts: 4,045 Location: Mid-South USA
Update, my mom, breast cancer, LDN « Thread Started on Dec 15, 2004, 10:22pm »
Five years ago my mom was dx'd with a very aggressive form of breast cancer. She had a lumpectomy. I was already on LDN(Low Dose Naltrexone) for my Chronic Progressive Multiple Sclerosis so the very day my mom was dx'd with cancer I gave her some of my LDN capsules(4.5mg, lactose filler) until she could get her own script which she did. LDN is an alternative breast cancer treatment & it works in many other types of cancer. My mom refused chemo after doing a phone consultation with Dr. Bernard Bihari who brought forth in his practice the use of Low Dose Naltrexone for humans with various forms of cancer. We faxed him all of my mom's reports. My mom made her decision of no chemo after speaking to Dr. Bihari. As of today ALL of her bone scans, blood work, mammograms and other scans have all come back negative for cancer. =========
My mom's cancer and suggested treatment by oncologist.
My mom was diagnosed 4/21/04. I started her on 4.5mg of my LDN capsules the night of 4/21/04. Surgery was on 4/29/04, Right Partial Lumpectomy.
Size of tumor 2.8cm, location 12 O'Clock.
Type Grade III, Poorly Differentiated, Infiltrating(Invasive) Duct Cell Adenocarcinoma.
Rate of Growth(percentage of cells dividing) S-Phase Of-13.6%(High-Fast)
Sentinel Node Axillary Lymph Nodes, none of two were positive
Staging Negative for Metastases
Stage IIA (T2 NO MO)
Percentage chance of relapse: 33% over 5-10 years with no further therapy
Treatment Plan
Chemotherapy: 5-FU--Intravenously every 3wks along with
Adriamycin--Intravenously every 3wks along with
Cytoxin--Intravenously every 3wks
For six treatments
Then
Radiation Therapy for approx 6 weeks daily x 5 days, Monday through Friday
No Anti-hormonal(anti-estrogen) therapy possible
My mom chose 4.5mg of LDN instead of chemo.
She did do the radiation.
My mom also takes two 500mg DL-Phenylalanine capsules per day at Dr. Bihari's request to keep her endorphins up throughout the day, this is recommended for her case, so before using it in your case check with Dr. Bihari in New York. If you have High blood pressure do not take this supplement. Solaray brand is what we use. Read the caution on label before using. People with PKU cannot take this either. This was recommended for my mom by a physician(Dr. Bernard Bihari) and I do not recommend all cancer patients use this supplement unless you have consulted a professional or Dr. Bihari.
Consultation with Bihari was on June 9th 2004.
My mom was scared into one single treatment of chemo by her doctors but once she took it and realized what the chemo poison was doing to her body she said...NO MORE...I will do LDN from this day forward.
May 4th, 2009 my mom had blood test done for cancer. It came back fantastic, no signs of cancer. Doctor says her bloodwork cannot be anymore perfect. She's now been moved to annual checks. Breast cancer free now 5 years. Also, keeping candida yeast overgrowth to a minimum in your system is a must to get the most benefit out of your LDN, I cannot stress this enough. Sugar fuels cancer growth so eliminate sugar from your diet, use Stevia or Xylitol from a healthfood store. Find a good quality probiotic and take daily. As a cancer treatment she also uses Brownwood Acres Fruit Fast CherryFlex for her cancer treatment and preventative.
Drink 2 to 3 glasses per day with Stevia or Xylitol sweetener added if needed.
Dr. Bernard Bihari is now retired but may still be doing phone consultations. There's a contact phone number on the official LDN website listed under the section on Dr. Bihari's curriculum vitae. Bill or Mrs. Bihari generally answers the phone.
Joined: Mar 2004 Gender: Female Posts: 4,045 Location: Mid-South USA
Re: Update, my mom, breast cancer, LDN « Reply #1 on Dec 15, 2004, 11:29pm »
Also....
Dr. Bihari told my mom that since she had been on LDN before the lumpectomy that any cancer cells that might have escaped during the surgery were destroyed like pac-men by the immune system that LDN had upregulated towards normal. Her surgeon and the oncologist she was referred to said if you don't take this chemo the cancer will come back and those doctors bashed and laughed at LDN. The surgeon saw my mom today and was amazed at how well she looked and was doing and sheepishly asked....Are you still taking that???? My mom said, you mean Low Dose Naltrexone? The surgeon said yes. Got the surgeon curious now, hee hee.
Joined: Mar 2004 Gender: Female Posts: 4,045 Location: Mid-South USA
Re: Update, my mom, breast cancer, LDN « Reply #2 on Mar 1, 2005, 4:38pm »
March 1st, 2005
My mom refused chemo for her breast cancer and instead she chose to use 4.5mg of LDN with lactose filler and the radiation. Her last tests came back negative for cancer 3 months ago and now these recent ones today are negative.
She was scared into one single treatment of chemo by her doctors but once she took it and realized what the chemo poison was doing to her body she said...NO MORE...I will do LDN from this day forward.
Re: Update, my mom, breast cancer, LDN « Reply #6 on Sept 22, 2005, 3:16pm »
Hi Brenda: I am so happy to hear about your Mother's progress. Two of my nieces have had breast cancer and had operations, chemo and everything. It has been a long road for them both. I wish I had known about this new treatment for them. I also have a friend with MS. I keep giving all the info to him that you send, but I don't know if he takes it seriously or not. I hope his family will. My love to you and Lola. Sylvia Barker Meeks
Re: Update, my mom, breast cancer, LDN « Reply #8 on Sept 24, 2005, 5:34pm »
H Brenda. My husband has MS and has been on LDN for 2 years and then I ran across your information on your mother with breast cancer. I had breast cancer 7 years ago, went through surgery, chemo and radiation. Now I have a bony reoccurance, received radiation therapy in July. I am on hormone therapy with Arimidex. I am wondering if LDN would help me also. I thought I read somewhere that if you were on hormone therapy, it would not help. Do you know anything about this? Any help would be appreiciated.
Joined: Mar 2004 Gender: Female Posts: 4,045 Location: Mid-South USA
Re: Update, my mom, breast cancer, LDN « Reply #9 on Sept 25, 2005, 11:18am »
Quote:
H Brenda. My husband has MS and has been on LDN for 2 years and then I ran across your information on your mother with breast cancer. I had breast cancer 7 years ago, went through surgery, chemo and radiation. Now I have a bony reoccurance, received radiation therapy in July. I am on hormone therapy with Arimidex. I am wondering if LDN would help me also. I thought I read somewhere that if you were on hormone therapy, it would not help. Do you know anything about this? Any help would be appreiciated.
The LDN may not be as effective as it would have been had you not done chemo but taking LDN now would be a definite plus for you. I suggest the Brownwood Acres Red Tart Cherry Juice Concentrate for you also, my mom drinks this as an alternative cancer treatment & preventative. LDN is okay with the hormone replacement.
Joined: Mar 2004 Gender: Female Posts: 4,045 Location: Mid-South USA
Re: Update, my mom, breast cancer, LDN « Reply #19 on Jun 12, 2007, 2:37pm »
My mom had scans and bloodwork done and all came back negative for cancer. She will have mammogram done tomorrow and I will update here tomorrow. My mom asked her oncologist about this news release below and the doc said after the research is complete there will surely be great changes to come on how breast cancer is treated.
MSNBC.com
-------------------------------------------------------------------------------- Breast cancer treatment may fail most women Researchers say common chemotherapy drugs too risky for many patients ANALYSIS By Robert Bazell Chief science and health correspondent Updated: 4:52 p.m. CT June 5, 2007 What if an estimated 100,000 breast cancer patients got drugs that did nothing to combat their cancer, but put them at risk for heart failure and leukemia?
That is the implication of new research that was presented in private session at this week’s meeting of the American Society of Clinical Oncology(ASCO) in Chicago.
The research, from Dr. Dennis Slamon, chief of oncology at the University of California, Los Angeles, suggests that the most widely used chemotherapy drugs may not benefit most women. Although the research hasn't been published or peer-reviewed yet, it is expected to be soon.
The drugs are a common class of treatments called anthracyclines, including doxorubicin, epirubicin, and mitoxantrone. Since their introduction in the 1980s anthracyclines have replaced older chemotherapy drugs in the combination therapies given to women. Administered in the months after surgery and radiation, the chemotherapy is intended to reduce the chances of a life-threatening recurrence of cancer, especially in women at high risk for relapse.
Early on, researchers understood that anthracyclines could cause heart failure in some patients. Recently, evidence has accumulated about the additional risk of leukemia, which can strike years or decades after the treatment.
Evidence for the effectiveness of anthracyclines versus the older drugs remained murky. Then, a 1998 meta-analysis (a study of all the previous studies) found the anthracyclines did a 4 percent better job at preventing recurrence. Despite their side effects, that study elevated the drugs to the standard of care.
Treating many to help few The UCLA research questions that treatment.
Slamon played a key role in the discovery and development of the hugely successful breast cancer drug Herceptin. Herceptin, which changed the way the disease is treated, specifically targets a gene called Her-2 that is overexpressed in 20 percent to 25 percent of breast cancers (a gene is overexpressed when its effect becomes excessive in the body). Herceptin’s success proved that breast cancer is not one disease, but many, with each benefiting from a tailored treatment.
In this latest study, Slamon looked at a more recently discovered gene called Topoll-2, which is sometimes, but not always, overexpressed along with Her-2. Anthracyclines stop breast cancer because they target Topoll-2.
Slamon examined tissue samples from more than 2,000 women who took part in seven clinical trials. His analysis showed that anthracyclines work only in women who overexpress the Topoll-2 gene. Such women account for 8 percent of breast cancer cases.
The anthracyclines — with all their side effects — have almost no effect in 92 percent of breast cancer cases.
“It seems apparent that we are treating patients who don't need the drug to get at that group who have a huge benefit,” Slamon told me. “And now we need to direct our therapy and target it more specifically.”
'Exciting result' Even when other cancer doctors were willing to use anthracyclines only as targeted therapy, they couldn’t. There is no commercial test yet for the Topoll-2 gene, although there likely will be in a few months.
Nevertheless, Johns Hopkins breast cancer specialist Dr. Nancy Davidson calls the findings “an exciting result.”
“It's early; it's provocative. We are waiting to see it go through peer review in the usual fashion,” says Davidson, who is incoming president of ASCO. “But there's a lot of buzz.”
Fran Visco, a cancer survivor and president of the National Breast Cancer Coalition, agrees the work needs to be published and peer-reviewed — very soon.
“This is going to be a sea change in how we treat breast cancer,” she told me. “There is no reason we shouldn't be moving very quickly to publish it and quickly to figure out how we're going to implement it in practice. Women deserve no less.”
Joined: Mar 2004 Gender: Female Posts: 4,045 Location: Mid-South USA
Re: Update, my mom, breast cancer, LDN « Reply #20 on Jun 14, 2007, 2:07pm »
My mom had scans and bloodwork done and all came back negative for cancer. Her mammograms were 2 days later and all is negative for cancer. My mom is breast cancer free now for 3 years and 2 months.
Re: Update, my mom, breast cancer, LDN « Reply #21 on Jan 10, 2008, 5:55pm »
Hi Brenda,
I have been diagnosed with Invasive breast cancer and underwent surgery recently. I had lymph node metastasis and hence may have to go for axillary dissection, chemo, and radiation. Saw the information about LDN and your mom. Is your mom still on LDN? When I start with LDN, are there any side effects that I have to watch out for? Should I start on a smaller dose and work my way up to 4.5mg? Thanks a lot for the help and support that you are providing here.
Joined: Mar 2004 Gender: Female Posts: 4,045 Location: Mid-South USA
Re: Update, my mom, breast cancer, LDN « Reply #22 on Jan 10, 2008, 11:29pm »
Yes, my mom is still on LDN and cancer free 3 1/2 years now.
If you are 105 pounds and over start with 4.5mg. There may be some sleep disturbance in the early going but that's the only side effect I know of that people with cancer have mentioned. Allergy to filler could arise.
Make sure you use one of the reputable compounding pharmacies listed on the LDN website to ensure your LDN works properly.
Re: Update, my mom, breast cancer, LDN « Reply #27 on Jun 3, 2008, 12:30am »
Just found this forum but don;t have time to post. Briefly in case it will help others-- my son has been on LDN 3 mg since 2000. That ans a predominately raw food diet turned him completely around. Only relapsed once when he went off it for a month to see if he could do without it. No more fatigue or other relapses. His mood is up and no more numbness which occurrred during thehed balance issue and bladder. He was also diagnosed with celiac disease ad I discovered that many people have been misdiagnosed with MS when they actully have celiac disease. Additionally I was diagnosed with inrtraductal inflitrating breast cancer in 1999. I tunred down all conventional therapy and juiced tons of carrots and have eaten a 100% raw food diet since. I'm a former RN also. Hope this helps someone. Helen
Re: Update, my mom, breast cancer, LDN « Reply #29 on Sept 17, 2008, 7:41am »
I was diagnosed with BC (triple negative, IDC, multi focal, 3.2cm, few single cells in a couple of nodes, stage 2a/b) at the age of 35 in Jan 2007. I have been on LDN 4.5 since after finishing my surgery, chemo and rads. Hoping LDN will help it not recur.
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Hi Brenda:
