I started LDN 3 weeks ago and I am on 2mg at night. I have been having increased symptoms since I increased to 2mg 10 days ago. Dizziness/fatigue/headache/dry eyes/not sleeping. These are all symptoms that I had prior to taking LDN, they are just worse now. One of my Dr's said I am sensitive to it and these should resolve in time the other thinks it's a herx reaction and may actually be killing off spirochetes. I feel terrible. Any suggestions as to whether I should continue or stop taking. I have been on long term abx for a year now and take lots of probiotics etc?
I also have lyme including borellia, babesia, ehrlichia and bartonella. I started LDN about a week ago and my symptoms have increased somewhat. I have been treating babesia and the symptoms coming out are from the other infections that have been suppressed by the babesia - tingling, muscle twitching etc.
My biggest complaint is trouble sleeping and a very tranquilized feeling the next day. Maybe feeling tranquilized is a good thing? Anyway I would stay with it, if I were you, for another month and hopefully your increase in symptoms is just a herx. It makes sense that it would be a herx, as the LDN is boosting your immune system.
my husband was diagnosed with lyme disease 5 yrs ago by a top lyme literate dr. he treated the lyme for two years with high powered antibiotics and the dr. finally told him he must have other issues. long story short, he has been diagnosed with lupus and most recently gluten intolerance. he's been gluten free for 3 months now. he started LDN five days ago and is terribly sick. i'm worried his lyme is not gone or coming back after everything i read. for those of you who experienced herx like symptoms on the ldn, how long did they last? he is taking 4 mg doses. thanks for any insight!
Post by veganrunner on Nov 16, 2011 8:28:44 GMT -6
I have been on LDN for Lyme Disease since January. I noticed a slow improvement over the course of 3 mo as we raised the dose from 1.5mg to 4.5mg. I am now living my life without any issues whatsoever. I have some residual *issues* from the Lyme, and long term abx, but for the most part I am in remission. I would say I am at 95% or better, running, doing normal things with no ill effects. LDN is not a quick fix, it definitely took time for my system to adjust. I also have/had Hashimoto's which has been *cured* as my antibodies went from close to 1000 to >20, which is considered normal, since I have been on the LDN.
anitx, that sounds similar to what autistic kids go through when first starting ldn. lots of things crop up at first. hopefully you can work through it. imagine how powerful this stuff is if its doing that!
Post by iwillgetbetter on Feb 9, 2012 14:09:40 GMT -6
I have lyme's too and when I was on treatment of rocephine shots weekly and trying LDN I got very sick, i.e. shortness of breath in the morning, dizzy, sick feeling all over. I stopped LDN. NOW after taking all my antibiotics for two years and back on LDN, I'm not having any issues. For me clearing up lyme issues with antibiotics first helped, i think for the LDN to work better for me. Just my opinion. Currently I'm not taking anything for my lyme's. I have Ulcerative colitis too, so I'm taking my meds for that and LDN transdermal cream. I'm only on night three but there's are no problems and I'm so happy! I'm really going to give this a try for the long haul. I've tried before for a month or two and it didn't do anything for me, but I was having so many issues. Now I feel my body is receptive and I'm excited about this round of LDN!